Resources for Patients, Families, and Caregivers

Project Patient Care, Recommendations for and by Patients, Families, and Caregivers for Elective Surgeries and Invasive Procedures During COVID-19 Pandemic:

Centers for Disease Control and Protection (CDC): Coronavirus Disease 19 Daily Life and Coping (

National Alliance on Mental Illness (NAMI):  COVID 19 Information and Resources (

American Association for Retired Persons (AARP)

n  6 Questions to Ask if Your Loved One Is in a Quarantined Facility (

n  The COVID 19 Imperative: Keep Family Caregivers and Long-Term Care Facility Residents Connected (

Morale & Gratitude:

n  Blog post: In a pandemic, does patient feedback still matter?

n  Twitter thread: 7 tips on boosting the effects of gratitude:

n  AARP: Innovative ways to say thank you.

Patient Safety Movement Foundation:

n  Guide to Medical Care at a Distance:

n  Hospital Plan of Care (Form designed for family caregivers to use to get the necessary information from the care team):




Covid-19 Tools and Resources

for Patient and Provider Audiences


Centers for Disease Protection and Control (CDC): Covid-19 Guidance landing page:

CMS Guidance on Visitation and Discharge for Covid-19 Infection control and prevention:

n  Medicare and C-19 landing page:

n  Hospitals, Psychiatric Hospitals and Critical Access Hospitals:

n  Nursing homes:

Project Patient Care guidance on visitor rules in hospitals and nursing homes: 

Patient Safety Movement Foundation (updated frequently): Helpful Covid-19 Resources (

Centers to Advance Palliative Care (CAPC):  COVID-19 Response Resources (

n  CAPC provides a toolkit on communication during end of life/palliative situations customized to Conavid 19 situations

University of Wisconsin: Best Case/Worst Case: ICU, with Special Content for Patients with COVID-19 (

n  Designed to help palliative care clinicians and other clinicians navigate daily conversations with patients’ families.  It also informs critical care clinicians about the lives of the patients they are caring for and supports families who are absent from the patients’ bedside.

Advanced Directives and End of Life Care

n  AARP forms for all States:

n  Practitioner Orders for Life-Sustaining Treatment (POLST):

n  Respecting Choices: Covid-19 Resources:

n  Project Patient Care podcast, Advance Care Planning During “Normal” and Covid-19 Times:

n  Project Patient Care Advance Directive Newsletter:

n  Prepare for Your Care:

n  Conversation Project:

General Covid-19 Tools and Resources

for Patients, Families, Caregivers and Provider Audiences

·      World Health Organization –

·      Centers for Disease Control and Prevention (CDC) –

·      Centers for Medicare and Medicaid Services (CMS) –

·      State of Illinois Coronavirus –

·      State of Illinois – Illinois Department of Public Health –

·      Illinois Nursing Home COVID-19 Confirmed Cases and Deaths –

·      City of Chicago COVID-19 –

·      National Association for Healthcare Quality (NAHQ) COVID-19 Quality Resources –